The disruption to her life, the misdiagnosis, and the lack of communication between the health care team and her family led to her eventual death after decades in a persistent vegetative state. Moreover, she was wrested from her family of origin and placed in foster care. Due to misdiagnosis, a string of unfortunate events prevented Lia Lee from receiving the best possible care. When Lia Lee was three months old, she had her first seizure.
The book is about Lia Lee, who was the first in her Hmong family to be born in the United States. Spirit Catches You and You Fall Down by Anne Fadiman is a groundbreaking book about cross-cultural communication in health care.
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